A Qualitative Case Study Exploring the Experiences of Caregivers Using a Patient Navigation Centre for Children with Complex Care Needs


  • Rosalinda Oi-Lin Knight Dalhousie University
  • Alison Luke University of New Brunswick
  • Shelley Doucet University of New Brunswick, Dalhousie Medicine New Brunswick




Introduction: Approximately 15% of children in North America live with a complex health condition. When caring for these children, it can be difficult and time-consuming to determine what services are available to meet their complex needs. Method: The aim of this research project was to explore the experiences of families using NaviCare/SoinsNavi, a patient navigation centre for children/youth with complex care needs and their families. Six families were assessed longitudinally over a six- to eight-month period. Semi-structured interviews were done at intake, three to five months, and six to eight months. Families also kept a monthly diary recording their experiences. Results: Families were satisfied with the services provided by NaviCare/SoinsNavi. They found it comforting to have someone that would take the time to listen to their concerns and was able to provide recommendations for services. Discussion: This longitudinal case study shows the benefit of navigation centres for children/youth with complex care needs and their families.

Author Biographies

Rosalinda Oi-Lin Knight, Dalhousie University

BSc (Hons), MSc, MD

Department of Family Medicine



Alison Luke, University of New Brunswick


Department of Nursing and Health Sciences

Shelley Doucet, University of New Brunswick, Dalhousie Medicine New Brunswick


Department of Nursing and Health Sciences


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