A Qualitative Case Study Exploring the Experiences of Caregivers Using a Patient Navigation Centre for Children with Complex Care Needs

Rosalinda Oi-Lin Knight, Alison Luke, Shelley Doucet


Introduction: Approximately 15% of children in North America live with a complex health condition. When caring for these children, it can be difficult and time-consuming to determine what services are available to meet their complex needs. Method: The aim of this research project was to explore the experiences of families using NaviCare/SoinsNavi, a patient navigation centre for children/youth with complex care needs and their families. Six families were assessed longitudinally over a six- to eight-month period. Semi-structured interviews were done at intake, three to five months, and six to eight months. Families also kept a monthly diary recording their experiences. Results: Families were satisfied with the services provided by NaviCare/SoinsNavi. They found it comforting to have someone that would take the time to listen to their concerns and was able to provide recommendations for services. Discussion: This longitudinal case study shows the benefit of navigation centres for children/youth with complex care needs and their families.

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DOI: https://doi.org/10.15273/hpj.v1i2.10653


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