Foregone Health Care: A Secondary Analysis of Survey Data on the Experiences of a Sample of Transgender and Nonbinary in Nova Scotians

Authors

DOI:

https://doi.org/10.15273/hpj.v2i1.11084

Abstract

Introduction: International research has identified that transgender and nonbinary populations experience high rates of discrimination, stigma, and negative health care experiences (Clark et al., 2018; Costa et al., 2018; Ercan Sahin et al., 2020). Collectively, these experiences can lead to forgone health care, defined as patients not accessing necessary health care due to many barriers, which can negatively impact health outcomes (House of Commons Canada, 2019). Objective: This study focuses on examining challenges in accessing gender-affirming health care among a sample of transgender and nonbinary Nova Scotians, and explores how these experiences may contribute to forgone health care. Methods: This research utilized secondary data analysis of a subset of data from an existing province-wide online survey of transgender and nonbinary Nova Scotians. The methodology of this study utilizes thematic analysis of closed-ended and open-ended survey response categories. The socio-ecological model was used as the conceptual framework to describe the various levels of influence contributing to transgender and nonbinary people forgoing health care. Results: Three main themes emerged from the data. Fear of discrimination leading to decreased quality of care, poor availability of transgender- and nonbinary-specific health services, and perceived or actual low levels of cultural competency among health care providers. Conclusion/Discussion: These factors contributed to forgone health care within this population, to which we respond with a number of recommendations to improve patient-provider interactions. Specifically, we recommend additional resources and training for health care providers and trainees to improve their cultural competency in providing gender-affirming care.

Author Biography

Jacqueline Gahagan, Dalhousie University

School of Health and Human Performance

References

Abramovich, A., de Oliveira, C., Kiran, T., Iwajomo, T., Ross, L. E., & Kurdyak, P. (2020). Assessment of health conditions and health service use among transgender patients in Canada. JAMA Network Open, 3(8), Article e2015036. https://doi.org/10.1001/jamanetworkopen.2020.15036

Aiello, R. (2022, January 7). Conversion therapy is now illegal in Canada. CTV News. https://www.ctvnews.ca/canada/conversion-therapy-is-now-illegal-in-canada-1.5731911

Arthur, S., Jamieson, A., Cross, H., Nambiar, K., & Llewellyn, C. D. (2021). Medical students‘ awareness of health issues, attitudes, and confidence about caring for lesbian, gay, bisexual and transgender patients: A cross-sectional survey. BMC Medical Education, 21, Article 56. https://doi.org/10.1186/s12909-020-02409-6

Boyatzis, R. E. (1998). Transforming qualitative information: Thematic analysis and code

development. SAGE Publishing.

Braun, V., & Clarke, V. (2012). Thematic analysis. In H. Cooper, P. M. Camic, D. L. Long, A. T. Panter, D. Rindskopf, & K. J. Sher (Eds.), APA handbook of research methods in psychology, Vol 2: Research designs: Quantitative, qualitative, neuropsychological, and biological (pp. 57–71). American Psychological Association. https://doi.org/10.1037/13620-004

Clark, B. A., Veale, J. F., Greyson, D., & Saewyc, E. (2018). Primary care access and foregone care: A survey of transgender adolescents and young adults. Family Practice, 35(3), 302–306. https://doi.org/10.1093/fampra/cmx112

Click, I. A., Mann, A. K., Buda, M., Rahimi-Saber, A., Schultz, A., Shelton, K. M., & Johnson, L. (2020). Transgender health education for medical students. The Clinical Teacher, 17(2), 190–194. https://doi.org/10.1111/tct.13074

Colpitts, E., & Gahagan, J. (2016). “I feel like I am surviving the health care system”: Understanding LGBTQ health in Nova Scotia, Canada. BMC Public Health, 16, Article 1005. https://doi.org/10.1186/s12889-016-3675-8

Costa, A. B., da Rosa Filho, H. T., Pase, P. F., Fontanari, A. M. V., Catelan, R. F., Mueller, A., Cardoso, D., Soll, B., Schwarz, K., Schneider, M. A., Gagliotti, D. A. M., Saadeh, A., Lobato, M. I. R., Nardi, H. C., & Koller, S. H. (2018). Healthcare needs of and access barriers for Brazilian transgender and gender diverse people. Journal of Immigrant and Minority Health, 20(1), 115–123. https://doi.org/10.1007/s10903-016-0527-7

Do, T. T., & Nguyen, A. T. V. (2020). ‘They know better than we doctors do‘: Providers‘ preparedness for transgender healthcare in Vietnam. Health Sociology Review, 29(1), 92–107. https://doi.org/10.1080/14461242.2020.1715814

Edkins, T., Peter, T., Veale, J., Malone, R., & Saewyc, E. M. (2016). Being safe, being me in the Prairie Provinces: Results of the Canadian Trans Youth Health Survey in Saskatchewan & Manitoba. Stigma and Resilience Among Vulnerable Youth Centre, School of Nursing, University of British Columbia. https://researchcommons.waikato.ac.nz/handle/10289/11069

Eichler, M. (2021). Same-sex marriage in Canada. In The Canadian Encyclopedia. Historica Canada. Retrieved March 23, 2022, from https://www.thecanadianencyclopedia.ca/en/article/same-sex-marriage-in-canada

Ercan Sahin, N., Aslan, F., & Emiroglu, O. N. (2020). Health status, health behaviours and healthcare access of lesbian, gay, bisexual and transgender populations in Turkey. Scandinavian Journal of Caring Sciences, 34(1), 239–246. https://doi.org/10.1111/scs.12759

Gahagan, J., & Colpitts, E. (2017). Understanding and measuring LGBTQ pathways to health: A scoping review of strengths-based health promotion approaches in LGBTQ health research. Journal of Homosexuality, 64(1), 95–121. https://doi.org/10.1080/00918369.2016.1172893

Gahagan, J., Gray, K., & Whynacht, A. (2015). Sex and gender matter in health research: Addressing health inequities in health research reporting. International Journal for Equity in Health, 14, Article 12. https://doi.org/10.1186/s12939-015-0144-4

Gahagan, J., & Subirana-Malaret, M. (2018). Improving pathways to primary health care among LGBTQ populations and health care providers: Key findings from Nova Scotia, Canada. International Journal for Equity in Health, 17, Article 76. https://doi.org/10.1186/s12939-018-0786-0

Giblon, R., & Bauer, G. R. (2017). Health care availability, quality, and unmet need: A comparison of transgender and cisgender residents of Ontario, Canada. BMC Health Services Research, 17, Article 283. https://doi.org/10.1186/s12913-017-2226-z

Grant, T. (2021, September 23). All 75,000 Nova Scotians with no family doctor will soon be able to get virtual care. CBC News. https://www.cbc.ca/news/canada/nova-scotia/nova-scotia-virtual-care-doctor-waitlist-expansion-1.6187051

Greene, M. Z., France, K., Kreider, E. F., Wolfe-Roubatis, E., Chen, K. D., Wu, A., & Yehia, B. R. (2018). Comparing medical, dental, and nursing students‘ preparedness to address lesbian, gay, bisexual, transgender, and queer health. PLOS ONE, 13(9), Article e0204104. https://doi.org/10.1371/journal.pone.0204104

Hadland, S. E., Yehia, B. R., & Makadon, H. J. (2016). Caring for lesbian, gay, bisexual, transgender, and questioning youth in inclusive and affirmative environments. Pediatric Clinics of North America, 63(6), 955–969. https://doi.org/10.1016/j.pcl.2016.07.001

Harbin, A., Beagan, B., & Goldberg, L. (2012). Discomfort, judgment, and health care for queers. Journal of Bioethical Inquiry, 9(2), 149–160. https://doi.org/10.1007/s11673-012-9367-x

House of Commons Canada. (2019, June). The health of LGBTQIA2 communities in Canada. Report of the Standing Committee on Health, 42nd Parliament, 1st Session. https://www.ourcommons.ca/DocumentViewer/en/42-1/HESA/report-28/page-144#38

Johns, M. M., Beltran, O., Armstrong, H. L., Jayne, P. E., & Barrios, L. C. (2018). Protective factors among transgender and gender variant youth: A systematic review by socioecological level. The Journal of Primary Prevention, 39(3), 263–301. https://doi.org/10.1007/s10935-018-0508-9

Kenagy, G. P. (2005). Transgender health: Findings from two needs assessment studies in Philadelphia. Health & Social Work, 30(1), 19–26. https://doi.org/10.1093/hsw/30.1.19

Kilanowski, J. F. (2017). Breadth of the socio-ecological model. Journal of Agromedicine, 22(4), 295–297. https://doi.org/10.1080/1059924X.2017.1358971

King, W. M., Hughto, J. M. W., & Operario, D. (2020). Transgender stigma: A critical scoping review of definitions, domains, and measures used in empirical research. Social Science & Medicine, 250, Article 112867. https://doi.org/10.1016/j.socscimed.2020.112867

Klein, E. W., & Nakhai, M. (2016). Caring for LGBTQ patients: Methods for improving physician cultural competence. The International Journal of Psychiatry in Medicine, 51(4), 315–324. https://doi.org/10.1177/0091217416659268

Lacombe-Duncan, A., Logie, C. H., Li, J., Mitchell, B., Williams, D., & Levermore, K. (2021). Social-ecological factors associated with having a regular healthcare provider among lesbian, gay, bisexual and transgender persons in Jamaica. Global Public Health. Advance online publication. https://doi.org/10.1080/17441692.2021.1887316

Lee, M., Tasa-Vinyals, E., & Gahagan, J. (2021). Improving the LGBTQ2S+ cultural competency of healthcare trainees: Advancing health professional education. Canadian Medical Education Journal, 12(1), e7–e20. https://doi.org/10.36834/cmej.67870

Margolies, L., & Brown, C. G. (2019). Increasing cultural competence with LGBTQ patients. Nursing, 49(6), 34–40. https://doi.org/10.1097/01.NURSE.0000558088.77604.24

Nova Scotia Health Authority. (n.d.). prideHealth. Retrieved July 4, 2021, from https://www.nshealth.ca/content/pridehealth

Nova Scotia Health Library Services. (n.d.). Navigating trans and gender-diverse health care: Gender-affirming surgery. Retrieved March 10, 2022, from https://library.nshealth.ca/TransGenderDiverse/Surgery

Price-Feeney, M., Green, A. E., & Dorison, S. (2020). Understanding the mental health of transgender and nonbinary youth. Journal of Adolescent Health, 66(6), 684–690. https://doi.org/10.1016/j.jadohealth.2019.11.314

Raffoul, M., & Lin, K. W. (2015). Cultural competence education for health care professionals. American Family Physician, 91(8), 523–524. https://www.aafp.org/afp/2015/0415/p523.html

Semlyen, J., & Kunasegaran, K. (2016). Understanding barriers to cervical screening uptake in trans men: An exploratory qualitative analysis. The Lancet, 388(Special Issue 2), S104. https://doi.org/10.1016/S0140-6736(16)32340-6

Socà­as, M. E., Marshall, B. D. L., Arà­stegui, I., Romero, M., Cahn, P., Kerr, T., & Sued, O. (2014). Factors associated with healthcare avoidance among transgender women in Argentina. International Journal for Equity in Health, 13, Article 81. https://doi.org/10.1186/s12939-014-0081-7

Veale, J. F., Watson, R. J., Peter, T., & Saewyc, E. M. (2017). Mental health disparities among Canadian transgender youth. The Journal of Adolescent Health, 60(1), 44–49. https://doi.org/10.1016/j.jadohealth.2016.09.014

Veugelers, P. J., Yip, A. M., & Elliott, D. C. (2003). Geographic variation in health services use in Nova Scotia. Chronic Diseases in Canada, 24(4), 116–123. https://epe.lac-bac.gc.ca/100/202/301/chronic_diseases_canada/pdf/2003/cdic244e.pdf

Whitehead, J., Shaver, J., & Stephenson, R. (2016). Outness, stigma, and primary health care utilization among rural LGBT populations. PLOS ONE, 11(1), Article e0146139. https://doi.org/10.1371/journal.pone.0146139

World Health Organization, Regional Office for Europe. (n.d.). WHO/Europe brief – transgender health in the context of ICD-11. Retrieved July 4, 2021, from https://www.euro.who.int/en/health-topics/health-determinants/gender/gender-definitions/whoeurope-brief-transgender-health-in-the-context-of-icd-11

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2022-05-23

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